WT1-Related Wilms Tumor (WT) Syndromes Resources
Websites
Coalition for Genetic Fairness
http://www.geneticfairness.org/
It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.
GeneReviews™
http://www.ncbi.nlm.nih.gov/books/NBK1116/
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
International WAGR Syndrome Association
http://www.wagr.org/
The IWSA is a network of families, healthcare professionals, educators and others who care for someone with WAGR syndrome.
Kidney Cancer Association
http://www.kidneycancer.org/
The Kidney Cancer Association is a charitable organization made up of patients, family members, physicians, researchers and other professionals.
National Organization for Rare Disorders (NORD)
http://www.rarediseases.org/
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
The Genetic Information Nondiscrimination Act (GINA)
http://ghr.nlm.nih.gov/spotlight=thegeneticinformationnondiscriminationactgina
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.