National Organization for Rare Disorders (NORD)
An educational link for organizations and individuals concerned with a rare disorder. They monitor legislation, research diseases, award grants and network individuals.
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An educational link for organizations and individuals concerned with a rare disorder. They monitor legislation, research diseases, award grants and network individuals.
Hemangioma and vascular malformation advocacy and support. Includes physician list, related support services, patient networking, blogs, and transportation services.
Information on medicine and healthcare assistance programs.
This is the website for Operation Smile a not-for profit international organization that treats facial deformities.
PHP increases the quality of life for children with special needs by providing services, resources and support for children, their families, and caregivers.
Reimbursement Solutions, Verification, and Payment HELPline. Program to help both insured and uninsured patients access Pfizer medicines (including Rapamune/Sirolimus).
PNOC is a network of eight children’s hospitals that conduct clinical trials of new therapies for children with brain tumors.
Many children worry about telling friends that they have diabetes. Learn how you can help your child prepare to tell friends about his or her disease.
These Durable Medical Equipment (DME) companies that offer diabetes supplies. Call and find if they have a contract with your insurance company.
Public Citizens for Children and Youth works to improve the lives of Philadelphia area children by advocating for quality health care, public education and more.