Sickle Cell Transplant Advocacy & Research Alliance
STAR Consortium dedicated to To greatly increase awareness, accessibility & success of Bone Marrow Transplant (BMT) and Gene Therapy as cures for Sickle Cell Disease.
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Camp Freedom
Camp Freedom is a lifeline for children with diabetes to develop the critical skills needed to thrive while managing this disease. Attending summer camp helps children develop social skills, self-respect and life-long friendships. We give kids the opportunity to meet other kids just like them while fostering independence, building self-confidence and gaining an awareness of a healthy lifestyle through education, nutrition, exercise, emotional well-being and glucose control.
Journey of Sound to the Brain (video)
This animated video illustrates how sounds travel from the ear to the brain, where they are interpreted and understood.
The “Together” of Healthier Together
Our team is making great strides toward helping children and families in West and Southwest Philadelphia live their healthiest lives with the help from our partners from like-minded organizations.
Exercise Apps
View a list of exercise apps for physical activity that children can use at home.
Teens, Mental Health and Parenting in the Midst of COVID-19
Rhonda C. Boyd, Ph.D., discussed the COVID-19 pandemic that requires us to spend more time together in our homes and has disrupted our routines.
Gluten-free on a Budget
Eating gluten-free can be challenging – especially on a budget. Learn a few quick tips to help you find the gluten-free food and ingredients.
Precision Mitochondrial Medicine
Watch a video where Marni Falk, MD, explains the requirements in precision mitochondrial medicine for addressing health system challenges in big data integration and mining, pre-clinical therapeutic modeling, innovative clinical trial design and team-based clinical care delivery.
Guided Mindfulness and Walking Tip Sheet
This guided mindfulness walk can help ease anxiety in stressful times. Recordings available in English and Spanish.
Mitochondrial Disease Genes Compendium, 1st edition
Dr. Marni Falk and a team of international experts have created a resource to provide an all-in-one, readily accessible, and easy-to-use at point of care reference on mitochondrial disease from a gene-based perspective. In this book, clinicians and researchers will find a complete overview of mitochondrial disease genes relevant across all specialties, cataloging and building context around clinical features and the genetic basis of each condition.