Neurofibromatosis Program
At Children's Hospital of Philadelphia (CHOP), we recognize children with neurofibromatosis type 1 (NF1) and neurofibromatosis type 2 (NF2) require specialized care from pediatric experts who have extensive experience with these genetic disorders. You’ll find that high level of care at CHOP’s Neurofibromatosis Program. Our team works closely with your family, your pediatrician and your child's school to provide support and medical guidance for children with NF1 and NF2.
NF can affect multiple systems of the body. It can also cause learning or attention problems. Caring for your child with NF requires close monitoring and, when needed, medical procedures. Our program includes many specialists who care for all aspects of your child's health and well-being. We'll support your whole family every step of the way.
How we serve you
Our doctors, nurses and other experts are grouped into specially-trained treatment teams to give your child the best care. These teams give your child personalized care while building strong relationships to support your family.
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Clinical Nutrition -
Audiology -
Nursing & Clinical Care Services -
Speech-Language Pathology -
Developmental and Behavioral Pediatrics -
Endocrinology and Diabetes -
Neuroscience Center -
Plastic, Reconstructive and Oral Surgery -
Executive Function Clinic -
Neuropsychology and Assessment Service -
NF Multidisciplinary Clinic -
Neurofibromatosis Family Association (NFFA) -
Occupational Therapy Services
Meet your team
Your child will be cared for by one of the most accomplished teams of NF experts in the world. The team includes multiple subspecialties that include genetics, pediatrics, neuro-oncology, neuro-ophthalmology, ophthalmology and orthopedics.
Neurofibromatosis Program locations
Find locations where our experts treat children with NF.
Neurofibromatosis Program resources
We have gathered resources to give you information and help you find answers to your questions. We hope this helps your family deal with any challenges you face.