Why Choose CHOP for HI Treatment
Vast experience
The Congenital Hyperinsulinism Center was established in 1998, the first of its kind in the United States. We have treated more than 1,600 children with congenital HI, and performed more than 600 pancreatectomies — making our Center the largest and most active HI Center in the world. The HI center was recently named a Center of Excellence by Congenital Hyperinsulinism International.
Unparalleled expertise
Our experience, combined with unique expertise in areas such as gene research, surgery and innovative treatment strategies, puts us at the forefront of clinical care for congenital hyperinsulinism.
Pioneering treatments
Our specialists are pioneers in the diagnosis and treatment of congenital HI, offering groundbreaking approaches that have set the standards for care worldwide.
Great outcomes
Our cure rate for focal hyperinsulinism is 95%; about 50% of children who require a pancreatectomy for HI are diagnosed with focal HI.
Outcomes data from 2004 to June 2023 Total cases: 174
Outcomes data from 2004 to June 2023 Total cases: 236
Outcomes data from 2004 to June 2023 Total cases: 410
Diffuse Patients
Focal Patients
Focal vs. Diffuse Patients
Multidisciplinary team
Our multidisciplinary team of experts includes pediatric endocrinologists, surgeons, radiologists, pathologists, anesthesiologists, psychologists, geneticists, nurses, social workers, researchers, genetics counselors, speech and feeding therapists, and dieticians — all working together to provide specialized, patient-centered and seamless care for children with congenital HI and their families.
Groundbreaking research
Since 2004, and under an FDA protocol, we have been performing the 18F-DOPA PET scan to identify focal HI lesions for the surgeons to remove. We have performed more than 430 18F-DOPA PET scans, by far the most of any institution in the world. This is only part of the innovative research being performed here at CHOP.
Compassionate, family-centered care
Each and every patient and family we care for is unique, and we aim to tailor our care for each child. We encourage parents to actively participate in their child’s treatment and the decision-making process.