Trisomy 21 Program News and Updates

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Decreasing the Challenge of Handwriting

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In a world with ever-advancing technology, handwriting could easily be pushed aside as a less than-important skill, especially if it proves challenging to a child, as is often the case for children with trisomy 21. But technology can also help children gain fine motor skills and increase their independence.

Adult Corner: Who Is Helping You?

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Now that your child with Down syndrome (trisomy 21) is an adult, what do you need to help you? Some parents and caretakers, as they age, can’t do as much as they used to or would like to — both for themselves and for their adult children. Learn what resources are available to help you.

Managing Behavior in Children with Down Syndrome: Part 1

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Like all children, children with Down syndrome are going to present caregivers with challenging behaviors, and they require both clear expectations about “good” behavior and appropriate limit-setting on unacceptable behavior. Your approach will depend on your child’s age, ability, temperament and where the challenging behaviors occur.

Researching Metabolic Health, Hypothyroidism

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The Children’s Hospital of Philadelphia is enrolling children with Down syndrome (trisomy 21) in two clinical studies — one investigating the risks of developing cardiac problems and type 2 diabetes, the other investigating the treatment for subclinical hypothyroidism.

CHOP Presents Monica & David Screening for Families

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Families of the Trisomy 21 program are invited to a special screening of the award-winning documentary Monica & David, a movie that explores the marriage of two adults with Down syndrome and the family that strives to support their needs.

CHOP’s Ninth Annual Trisomy 21 Symposium

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The Children's Hospital of Philadelphia are hosting a one-day symposium to provide parents and healthcare professionals with the most recent clinical information, therapeutic approaches and current research being conducted in the field of trisomy 21.

‘Self-Talk’ in Adults with Down Syndrome

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Self-talk in adults with Down syndrome can be a powerful coping mechanism, and is generally not a reason for concern. To learn more about the health and psychosocial needs of adults with Down syndrome, contact the Adult Down Syndrome Center at The Children's Hospital of Philadelphia.

Pool Groups Begin in March

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Aquatic therapy is a fun and effective way for children with Down syndrome to develop functional skills, build strength and improve total body coordination and body awareness, and learn water safety.


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