Pulmonary Hypoplasia Program Resources

More information about congenital diaphragmatic hernia (CDH) to help make choices about your child’s care and choose a CDH treatment center that is right for you.

Babies born with congenital diaphragmatic hernia (CDH) may go on ECMO if they aren’t responding well to other efforts to stabilize them. Find answers to common questions parents have about this potential treatment.

Watch this short video to learn more about the long-term, multidisciplinary care provided through CHOP's Pulmonary Hypoplasia Program.

http://breathofhope.com

Breath of Hope raises awareness of congenital diaphragmatic hernia (CDH) by educating and supporting parents, family members, medical professionals, and anyone who wants to learn more about CDH.

http://www.cherubs-cdh.org

CHERUBS is the family support division of CDH International, a nonprofit group that supports families and medical care providers of children with congenital diaphragmatic hernia.

https://www.facebook.com/groups/omphalocele/

Omphalocele Awareness/Mothers of Omphaloceles (MOOS) is an Internet support group for families of children with omphaloceles.

http://www.parenttoparent.org

This network empowers and supports parents across Pennsylvania by connecting them with families of children & adults with special needs or disabilities who’ve had similar journeys.

http://peytonspromise.com/

Peyton’s Promise helps raise awareness and money for ongoing congenital diaphragmatic hernia (CDH) research. It was founded by Debbie and Dustin Laricks, whose daughter Peyton was born with CDH.