The Adult Congenital Heart Association (ACHA) provides educational materials and hosts educational and advocacy events for patients with congenital heart disease and their families.
ACC is a nonprofit medical society dedicated to transforming cardiovascular care and improving heart health through education, research, quality care and health policy.
The ISACHD provides information for patients with congenital heart disease including a CHD glossary, list of advocacy and support groups, print resources, and clinic directory.