Center for Pediatric Inflammatory Bowel Disease Resources

For Parents and Caregivers

AGA includes more than 16,000 members from around the globe who are involved in all aspects of the science, practice and advancement of gastroenterology.

The Crohn's and Colitis Foundation is a nonprofit, volunteer-driven organization dedicated to finding the cures for Crohn's disease and ulcerative colitis

This book explains the symptoms, diagnoses and treatments associated with IBD, and provides parents with practical advice on how to tell their children about IBD. It also discusses the challenges children may face at school and in their social lives, especially as they grow older.


Patient Family Education

This short animation will help you and your child prepare for your upcoming colonoscopy visit with CHOP. It will help your child know what to expect on the day of their appointment, who and what they will see, and what will happen before, during, and after their visit.

Preparing Your Child for Their Endoscopy

This short animation will help you and your child prepare for your upcoming endoscopy visit with CHOP. It will help your child know what to expect on the day of their appointment, who and what they will see, and what will happen before, during, and after their visit.

This short animation will help you and your child prepare for your upcoming endoscopy and colonoscopy visit with CHOP. It will help your child know what to expect on the day of their appointment, who and what they will see, and what will happen before, during, and after their visit.


Camps

Camp Oasis was established by the Crohn's and Colitis Foundation to enrich the lives of children with Crohn's disease and ulcerative colitis.


Educational Materials

In this episode of Bowel Sounds, hosts Drs. Temara Hajjat and Peter Lu talk to Dr. Judith Kelsen about the presentation, evaluation, and management of children with very early onset inflammatory bowel disease (VEO-IBD).

Watch the video presentations given by experts from Children's Hospital of Philadelphia (CHOP) at our IBD Education Day 2021.

Watch the video presentations given by experts from Children's Hospital of Philadelphia (CHOP) at our IBD Education Day 2022.

Watch the video presentations given by experts from Children's Hospital of Philadelphia (CHOP) at our IBD Education Day 2023.

Pediatric gastroenterologist Betsy Maxwell, MD, MS, talks about the theories as to why IBD is on the rise in children, including an overlap between genetic factors, the immune system, the microbiome, and environmental triggers.

Developed by doctors and patients, the app includes features that help you and your doctor better understand your IBD treatment.

Lindsey Albenberg, MD, a physician with CHOP's Division of Gastroenterology, Hepatology and Nutrition and researcher with CHOP's Center for Pediatric Inflammatory Bowel Disease, was a recent guest on "Dr. M's Women and Children First Podcast." 

IBD symptoms should never get in the way of your child’s success at school. There is a simple way to protect your child’s school experience by creating accommodations for their IBD symptoms and lifestyle.


For Children and Teens

GIKids provides easy to understand information about the treatment and management of these pediatric digestive conditions for children and parents.

A dedicated website for teens with IBD powered by the Crohn’s and Colitis Foundation. It provides information about life with Crohn's and ulcerative colitis, treatments and research, as well as ways to connect with other teens with IBD, including forums and support groups.


Nutrition

Is committed to improving the nation's health and advancing the profession of dietetics through research, education and advocacy.

View a list of recipes created by team members at Children's Hospital of Philadelphia (CHOP).


Research Councils


Support and Education Groups


Websites

The AAP is committed to the optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.

Patient support program offering savings and financial assistance to Entyvio® patients. Call 1-844-ENTYVIO (1-844-368-9846).

ImproveCareNow uses scientific data to drive improvements for kids with Crohn’s disease and ulcerative colitis.

Eligible patients may pay $5 for Remicade® or Stelara®. Call 1-877-CarePath (877-227-3728).

NDDIC provides information about digestive diseases, statistics, research and more, from the National Institute of Diabetes and Digestive and Kidney Diseases.