Center for Fetal Diagnosis and Treatment Health Resources

Learning your baby has a birth defect is a life-changing experience, and we want you to know that you are not alone. To help you find answers to your questions -- either before or after visiting the Center for Fetal Diagnosis and Treatment -- we've created this list of educational health resources.

Accommodations

The Ronald McDonald House serves as a "home-away-from-home" for families whose children are being treated at nearby hospitals. The Ronald McDonald House of Southern New Jersey has rooms available for patient families as well as mothers undergoing fetal surgery or delivering in CHOP’s Special Delivery Unit.

Hosts for Hospitals is a unique nonprofit program that provides accommodations in the homes of local families at minimal or no cost to families whose homes are far away.

The Ronald McDonald House serves as a "home-away-from-home" for families whose children are being treated at nearby hospitals. The Philadelphia Ronald McDonald House has rooms available for patient families as well as mothers undergoing fetal surgery or delivering in CHOP’s Special Delivery Unit.


Websites

Breath of Hope raises awareness of congenital diaphragmatic hernia (CDH) by educating and supporting parents, family members, medical professionals, and anyone who wants to learn more about CDH.

Find comprehensive breastfeeding information, online forums and support groups, FAQs, conferences, an international online store, and more.

The Spina Bifida Association is a comprehensive source of information and resources about spina bifida, the most common permanently disabling birth defect in the United States.

The TTTS Foundation's website offers information for families during and after pregnancy, research updates, a message board, and more.

March of Dimes is an international organization that works to prevent birth defects, premature birth, and infant mortality and to support expectant and new parents.

Peyton’s Promise helps raise awareness and money for ongoing congenital diaphragmatic hernia (CDH) research. It was founded by Debbie and Dustin Laricks, whose daughter Peyton was born with CDH.


Pregnancy

This book is for children ages 2-10 whose mother is on pregnancy bed rest. It will help children better understand, be less fearful and realize there is an end to the bed rest experience.

This book includes information on how to prepare for labor; epidurals and other medications for labor; cesarean birth, breastfeeding and newborn care and much more.

Women undergoing bed rest during pregnancy will benefit from the insight McCann gained as she successfully endured both an at-home as well as extended hospital bed rest.

Amy E. Tracy shares her experiences ─ and those of many others ─ to help you and your family not only survive but thrive during your pregnancy.

Baby and childcare experts, Dr. Bill and Martha Sears, tell you what to expect, month by month, from conception through birth in this comprehensive guide.

When Pregnancy Isn't Perfect is a companion, adviser and lifeline for the thousands of women who face the prospect of a problem pregnancy.

The American Pregnancy Association is a national health organization that promotes reproductive and pregnancy wellness through education, support, advocacy and community awareness.

Birth Source promotes positive pregnancy outcomes through education, promotion of evidence-based research, family-centered care, maternal-child health advocacy, and awareness.

About.com offers free online childbirth classes that include a comprehensive discussion of labor and birth from a certified childbirth educator and RN.

Medline Plus' Pregnancy website offers late-breaking news, health advice, pregnancy anatomy and physiology, prenatal nutrition, and much more.

Sidelines is a national nonprofit organization that provides support to women who are on bed rest during pregnancy.


Support Groups


Coping

Perinatal Hospice is an online resource for expectant families who plan to continue their pregnancy with a baby with a terminal diagnosis.

This is a foundation of international volunteer photographers who support parents facing the loss of a baby by offering free compassionate photography services in the hospital or hospice setting.


Books

This book provides information on how to get started with breastfeeding, including tips for latching on, increasing your milk supply, breastfeeding in absentia, breast pumps and more.

This book offers a comprehensive introduction to breastfeeding — how to get ready before the baby arrives, how to involve fathers and siblings, the best diet and foods for mom, and more.

Kathleen Huggins equips breastfeeding mothers with all the information they need to overcome potential difficulties and nurse their babies successfully.


Postpartum Depression

Karen R. Kleiman and Valerie Raskin debunk the myths surrounding postpartum depression and provide compassionate support and solid advice for women with PPD.