Raising Awareness About Congenital Heart Defects

Each year, approximately 1 million babies are born with heart defects worldwide. Children born and living with congenital heart defects are an incredible reminder of the power of great medical care and the importance of medical research. There are many things you can do to help improve the lives of these children.

Here's how you can help raise awareness about congenital heart defects:

Get the facts

Get the facts about heart defects and help inform others. The more you know, the better prepared you'll be to help raise awareness and research funds for the cause.

Our infographic highlights some important facts about pediatric heart disease — check it out and then share it with your friends and family!


You can help create change by sharing your story with elected officials and the public:

  • Serve as the voice of children as decisions are made that impact their health and welfare
  • Educate the public and elected officials about issues important to children with heart defects and their families
  • Help policymakers develop viable solutions to problems
  • Show support for a great cause

Download our Heart Awareness Toolkit to learn more about how to advocate on behalf of children with heart defects.

Tell your story

News stories go a long way in raising awareness about congenital heart defects. Try sending a press release that includes details about your child's experience to your local newspaper, TV or radio station. Our Heart Awareness Toolkit contains a sample press release that you can customize with your personal story.

Every heart has a story: listen to them all

Listening to others is just as important as sharing your own story. Watch the short videos below to meet some of our courageous patients. You’ll hear directly from families about what led them to CHOP, their experiences at the Hospital, the treatments and surgeries their children have undergone, how they’re doing today, and advice for other families facing a diagnosis of congenital heart disease.

Read more inspiring stories on our patient stories page.

Share your passion for the cause

Opinion pieces (“op-eds”) in newspapers reach many people and are a great way to raise awareness. Newspapers often publish opinion pieces by people in their community who are passionate about a cause. You can write about how a congenital heart defect affected your family. Our Heart Awareness Toolkit includes samples and tips for writing op-eds.


Support our research efforts, our programs and our services. Every gift, large or small, helps us provide lifesaving care, advance research, develop new treatments and improve the lives of children treated at the Cardiac Center. Find out how you can help.

Reviewed on March 31, 2014