Biliary Atresia Clinical Care Program Resources

Support and Education Groups

Biliary Atresia Network is an online support group for families who are dealing with pediatric liver disease, biliary atresia pre- or post-transplant.


Websites

ALF is a national, nonprofit health agency dedicated to preventing, treating and curing liver diseases through research, education and support groups.

This website provides information and communication about biliary atresia to the general public and a secure area for healthcare professionals.

This foundation is devoted to providing support for research and education into the causes, diagnoses, prevention and treatment of all liver disease.

ChiLDRN Supports the discovery of new diagnostics, etiologic and treatment options for children with liver disease, and those who undergo liver transplantation.

CLDF is a unique national charity dedicated to taking action against the effects of all liver diseases of childhood.

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

PALF aims at identifying, characterizing, and developing management strategies for infants, children, and adolescents who present with acute liver failure.